Resources
Resources
Access Technologies, Inc. (ATI)
http://www.accesstechnologiesinc.org
Oregon’s statewide Assistive Technology Program, ATI, specializies in ergonomic risk assessments, assistive technology evaluations, technology training services, and the Oregon Technology Access for Life Needs Project (TALN).
Americans with Disabilities Act (ADA)
http://www.jan.wvu.edu/links/adalinks.htm
Contains the full text of the ADA Statute, the Accessibility Guidelines, and other Assistance Documents.
Center for Excellence in Developmental Disabilities
One of two University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) that works with people with disabilities, members of their families, state and local government agencies, and community provders in projects that provide training, technical assistance, service, research, and information sharing, with a focus on building the capacity of communities to sustain all their citizens. The Center for Excellence in Developmental Disabilities is located at the University of Oregon, College of Education in Eugene, OR.
Center for the Study and Advancement of Disability Policy
http://www.disabilitypolicycenter.org/
The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.
ROBERT “BOBBY” SILVERSTEIN is the Director of the Center for the Study and Advancement of Disability Policy (CSADP) in Washington, D.C. and former staff director and chief counsel to the U.S. Senate Subcommittee on Disability Policy, chaired by Senator Tom Harkin.
Children with Diabetes
http://www.childrenwithdiabetes.com/index_cwd.htm
An on-line community for children with diabetes and their families.
Circle of Inclusion
http://www.circleofinclusion.org/
Offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight, for early childhood service providers and families of young children. Information is available in Spanish, Korean, Japanese, and Chinese.
Connect for Kids
Offers information and tools about issues affecting children, families, and communities and how to take action to improve policies and programs, and, ultimately, the fabric of our nation as a whole. Connect for Kids is managed by the Forum for Youth Investment. In 2007, Connect for Kids joined forces with Child Advocacy 360 to continue to provide excellent articles and annotations of “best of the Web” child-focused content.
Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
http://www.directionservice.org/cadre/index.cfm
The National Center on Dispute Resolution, encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs. This website contains tips and tools towards effectively resolving special education disputes, so as to reduce the use of expensive adversarial processes.
Diabetes Education Program (NIH)
http://www.ndep.nih.gov/resources/school.htm
From the National Diabetes Education Program of the National Institutes of Health, this page is geared toward school personnel, but has information and links to resources of direct interest to families with children experiencing diabetes.
Diabetes Information for Parents and Kids
http://www.diabetes.org/for-parents-and-kids.jsp
For Parents and Kids is a web-based reference on diabetes from the American Diabetes Association for parents whose child has just been diagnosed. It covers the basics of diabetes treatment, as well as issues that may be experienced. It is not meant to replace advice and education from the child’s health care team, but rather to be used as a reference as you begin your diabetes journey.
Disability Compass
http://www.disabilitycompass.org/
Disability Compass is an interactive web-based resource center, developed in Oregon, providing local community and national information on services, products, and special health care resources for people with disabilities, their families and their supporters. Please visit this site to further search for links to resources within Oregon communities, statewide, and abroad.
Disability History Museum
http://www.disabilitymuseum.org/
Home to a searchable, theme-based digital collection of documents and images related to disability history in the United States, drawn from public and private collections around the country. The site provides tools towards helping all people, with and without disabilities, develop a deeper understanding of human differences and how vital to our common life the historical experiences of people with disabilities have been.
Disability Info.gov
Provides quick and easy access to comprehensive information about disability programs, services, laws and benefits. You can begin your search by visiting any of nine subject areas--employment, education, housing, transportation, health, benefits, technology, community life, and civil rights. To find disability resources in your state just click on the Find State and Local Resources map located in each of these subject areas.
Some of the many topics you will find information about on DisabilityInfo.gov include:
Americans with Disabilities Act (ADA)
Autism and Other Developmental Disabilities
Fair Housing Rights
Social Security Disability Benefits
Vocational Rehabilitation
Disability is Natural
http://www.disabilityisnatural.com/
Provides information, articles, and more on inclusion, respectful language, looking at abilities versus disabilities.
Dougy Center
The Dougy Center, a National Center for Grieving Children & Families, has a nice list of publications, including guidebooks for adults, resources for schools, workbooks for kids, videos & pamphlets--as well as materials to help individuals start a grief support program in their own community.
Family Center on Technology and Disability (FCTD)
A national resource center, operating entirely through program support from the US Department of Education’s Office of Special Education Programs (OSEP). FCTD supports organizations and programs that work with families of children and youth with disabilities, offering a range of information and services on the subject of assistive technology.
Family Educational Rights and Privacy Act (FERPA)
http://www.ed.gov/policy/gen/guid/fpco/ferpa/index.html
The Buckley Amendment is the short name for the federal law known as the Family Educational Rights and Privacy Act (FERPA). This law gives parents and guardians of students under 18 years of age, and all students over 18, the right to see, correct and generally control access to student records. This law can be found beginning at 20 USC §1232g. Regulations are found at 34 CFR §99.
Guardianship
http://www.arcoregon.org/guardianship1.htm#lin
Guardianship is an important issue for individuals with developmental disabilities and their families and caregivers. The following information is offered on The Arc of Oregon Guardianship web page, as a primer on guardianship and Arc programs.
I’m Tyler
Ability Awareness--this is the goal for high schooler, Tyler. Believing that “what a person, any person CAN do is much more important than he/she can’t”.
Including All Kids
http://www.includingallkids.org/
Provides guidance to help youth program leaders and volunteers expand extracurricular opportunities for all young people to be engaged by making their organizations and programs more accessible and inclusive.
Juvenile Rights Project, Inc
Provides legal service to children and families without the means to retain counsel in the state of Oregon.
Kids Included Together San Diego Inc
Specializing in providing best practices training for community-based youth organizations committed to including children with disabilities into their existing recreational, social and child care programs. Recognizing the tremendous need in the community, KIT established the National Training Center on Inclusion (NTCI) in San Diego, CA--a state-of-the-art training facility and learning lab that creates and disseminates best practice information to the out-of-school time field. NTCI offers live training, eLearning and a library of books, videos/DVDs and other materials related to inclusion and disability for use by youth providers and KIT trainers.
Kids Together Inc
Offers information and resources on inclusion for children and adults with disabilities. The information is intended to be helpful to families, professionals, educators, advocates, self-advocates and the community!
Map to Inclusive Child Care
http://www.cainclusivechildcare.org/camap/inclusion.htm
California’s Map to Inclusive Child Care Project to create a statewide system of support, training and resources that gives all families and providers barrier-free access to inclusive child care. Included are links to inclusive practices in early childhood programs.
Medicaid Information for People with Cognitive Disabilities
A comprehensive web site devoted to making Medicaid understandable. This site provides state-by-state guidance to services available for persons with developmental disabilities.
National Association for the Education of Young Children
Dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children from birth through age 8.
National Dissemination Center for Children with Disabilities (NICHCY)
Provides information on disabilities and disability related issues.
National Foundation for Celiac Awareness
Offers information on gluten-free eating and living, including live and archived webnairs. The National Foundation for Celiac Awareness (NFCA) is a 503(c)(3) non-profit organization dedicated to raising awareness and funding for celiac disease that will advance research, education and screening amongst medical professionals, children and adults.
OHSU/CDRC Multilingual Web Resource
http://www.ohsu.edu/oidd/LEND/multilingual_resources/index.html
Developed through the Oregon Institute on Disability and Development (OIDD)’s Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program, provides links to websites in a variety of languages, to provide information regarding developmental conditions; as well as local, national, and international resources for families.
Oregon Administrative Rules
http://arcweb.sos.state.or.us/banners/rules.htm
ORS 183.310(9) defines “rule” as “any agency directive, standard, regulation or statement of general applicability that implements, interprets or prescribes law or policy, or describes the procedure or practice requirements of any agency.” The Oregon Administrative Rules are published by the Oregon Secretary of State.
State regulations pertaining to special education can be found beginning at Oregon Administrative Rules, OAR Chapter 581: http://www.sos.state.or.us/archives/rules/OARS_500/OAR_581/581_tofc.html
Oregon Child Care Resource and Referral Network
http://www.oregonchildcare.org
Child Care Resource and Referral Agencies (CCR&Rs) are grass roots programs that provide child care referrals and parenting information to parents, training and technical assistance to child care providers, information and support for employers and for the community. CCR&R programs work with parents seeking child care, as well as parents with questions about what is important in child care, or perhaps with questions about their child’s development. CCR&R programs work with providers, connecting them with parents needing child care, providing access to child care trainings, and providing information and technical assistance.
Oregon Department of Education
Website for Oregon’s Department of Education. Special Education is found under the Office of Student Learning and Partnerships.
Oregon Department of Human Services, Developmental Disabilities Services
Case management (service coordination) and other services are available for children and adults in Oregon, eligible as developmentally disabled. Check the phone book under county listings for your local office.
Oregon Department of Human Services, Office of Vocational Rehabilitation Services (OVRS)
Provides employment evaluations, training and other work related services to eligible persons with disabilities in the state of Oregon. Check your phone book under state listings for your local branch office.
Oregon Institute on Disability and Development (OIDD)
One of two University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) that works with people with disabilities, members of their families, state and local government agencies, and community provders in projects that provide training, technical assistance, service, research, and information sharing, with a focus on building the capacity of communities to sustain all their citizens. OIDD is located at the Oregon Health Sciences University, Child Development and Rehabilitation Center in Portland, OR.
Oregon Law Help
For legal information about public benefit programs in Oregon.
Oregon Revised Statutes
http://www.leg.state.or.us/ors/home.html
The text appearing in this database was produced from material provided by the Legislative Counsel Committee of the Oregon Legislative Assembly. The official record copy is the printed published copy of the Oregon Revised Statutes.
State special education law can be found beginning at Oregon Revised Statutes, ORS Chapter 343: http://www.leg.state.or.us/ors/343.html
Oregon Technology Access Program (OTAP)
Offers statewide services for children from birth to 21 years, regarding the use of technology for children with disabilities--including information, training, technical assistance, referral, and a used equipment marketplace.
Partnerships for Inclusion
A statewide technical assistance project with offices in the western, central, and eastern regions of North Carolina. Partnerships for Inclusion (PFI) provides training and consultation to support the inclusion of young children with disabilities, ages birth through five, in all aspects of community life.
Section 504 & Title II of the ADA
http://www.ed.gov/policy/rights/guid/ocr/disability.html
This website provides information on Section 504 of The Rehabilitation Act of 1973, which prohibits discrimination based on disability in educational programs or activities receiving federal financial assistance, and Title II of the Americans with Disabilities Act (ADA), which prohibits discrimination based on disability in public entities. Linkages to various disability discrimination resources is also provided.
Social Security Administration
Social Security Administration with information on disability, Medicare, Supplemental Security Income (SSI) for adults and children, Social Security Disability Insurance (SSDI), Ticket to Work, The Red Book--A Guide to Work Incentives, and more.
For representative payees, the Social Security Administration recently launched a new online accounting report option. When representative payees receive the paper form in the mail telling them that it’s time for their annual accounting report, they can go to http://www.socialsecurity.gov/payee and follow the instructions.
The Individuals with Disabilities Education Improvement Act (IDEIA or IDEA 2004)
http://www.ed.gov/about/offices/list/osers/osep/index.html
The Individuals with Disabilities Education Improvement Act (IDEIA or IDEA 2004) can be found beginning at 20 USC §1400. Federal regulations are at 34 CFR § 300. The IDEA used to be called the Education for All Handicapped Children Act (EAHCA or EHA) or P.L. 94-142. Additional websites are: http://idea.ed.gov/.
The National Fragile X Foundation
http://www.fragilex.org/html/home.shtml
National website dedicated to Fragile X, a family of genetic conditions, which can impact individuals and families in various ways.
The State of Disability in America
http://www.ucp.org/uploads/StateofDisability.pdf
This is a great piece on the current state of disability in America, by the Life without Limits Project: Organizing for Change, covering disability rights in America, healthcare and independence, free and appropriate education, employment, and housing.
The Youthhood--Where Teens Prepare for Life After High School
http://www.youthhood.org/index.asp
A curriculum-based tool designed for use by all youth--with and without disabilities-- that can help young adults plan for life after high school. Although the site addresses youth directly, it is intended to be used as a curriculum within a classroom, community program, or in any setting where adults are working with youth to set goals and plan for the future. The Youthhood can help to develop and enhance a student’s Individualized Education Plan (IEP).
Where?s Molly
For decades up until 2000, Fairview Hospital and Training Center in Salem was the common destination for children and adults with developmental disabilities in Oregon. Where?s Molly, produced by Jeff Daly and shown at the 30th Portland International Film Festival in 2007, is Daly’s personal story of family reunification, changing attitudes about the care and rights of the mentally disabled, and of the hope that for other families, the value and meaning of life is not judged by capability, but by spirit and love. His sister was one of thousands of “Molly’s” placed in institutions across the country--often forever separated from family members by the belief that closing the door and not looking back was best for everyone.
Wrightslaw
Provides information about special education law and related advocacy to parents, educators, attorneys and others working on behalf of children with disabilities.