About Us
Photo courtesy of NWDSA and Jodi Collins of Urban Photography

International Rett Syndrome Foundation
The International Rett Syndrome Foundation (IRSF) is a 501(c)(3) non-profit corporation established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation (RSRF) and the International Rett Syndrome Association (IRSA), realizing a more unified effort to approach the challenges faced by families and those living with Rett Syndrome. IRSF believes the fastest way to a cure and treatments includes making significant and strategic investments in Research while bolstering Family Support, Public Awareness, and Advocacy programs.
The Regional Rep Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It has become an integral part of IRSF.
Website: http://www.rettsyndrome.org/
Address:
4600 Devitt Dr
Cincinnati, OH 45246
Phone:
513.874.3020
1.800.818.7388
Fax:
513.874.2520

Autism Society of Oregon
Autism Society of Oregon is the state chapter of the Autism Society of America (ASA) which is the the oldest and largest grassroots organization within the autism community. Autism Society of Oregon (ASO) seeks to empower individuals with autism, their families and their service providers to improve the quality of their lives through support and information.
Their goals include increasing awareness of the needs, interests, problems and solutions related to autism in Oregon's local communities, state service provider systems, and government agencies; and creating a statewide information and resource network to promote more mutual communication and better service delivery across Oregon.
Website: http://www.oregonautism.com/
Address:
P.O. Box 396
17600 Pacific Hwy, Davignon Hall #237
Marylhurst, OR 97036
Phone:
503.636.1676
1.888.288.4761 outside of Portland
Fax:
503.636.1696

Disability Rights Oregon
Disability Rights Oregon (formerly the Oregon Advocacy Center) is an independent nonprofit law firm that promotes and defends the rights of individuals with disabilities anywhere in Oregon. All services are free of charge and confidential, provided by experienced and dedicated attorneys, advocates, intake specialists and administrative staff.
Each state and territory has a Protection & Advocacy system entirely separate and independent from both federal and state governments. Disability Rights Oregon is the Protection & Advocacy system for Oregon.
Website: http://www.disabilityrightsoregon.org
Address:
620 SW Fifth Avenue, Suite 500
Portland, OR 97204-1420
Phone:
503.243.2081 Portland Metro
1.800.452.1694 outside of the Portland Metro
Fax:
503.243.1738
Deschutes County Local Interagency Coordinating Council (LICC)
Address:
c/o Alyce Hatch Center
1406 NW Juniper
Bend, OR 97701
Phone:
541.389.5437

United Cerebral Palsy of Oregon and SW Washington
United Cerebral Palsy (UCP) of Oregon and SW Washington offers direct program service, information, and advocacy for people with cerebral palsy and other disabilities throughout our region. Since 1955 UCP has provided opportunity and support for people with cerebral palsy and other disabilities in the community. We are committed to creating innovative services and desegregated support for our constituents.
Website: http://www.acommunityforeveryone.org
Address:
11731 NE Glenn Widing Drive
Portland, OR 97220
Phone:
503.777.4166
1.800.473.4581
Fax:
503.771.8048
Oregon Family Support Network
The Oregon Family Support Network is a statewide non-profit organization of families with children and adolescents who have behavior, emotional and mental health challenges. Our network of families throughout the state, offer support group meetings throughout the year, youth programs, advocacy training, and education programs. We work with professionals and families in teaching how to navigate the mental health system.
Website: http://www.ofsn.org
Address:
P.O. Box 324
Marylhurst, OR 97036
Phone:
503.675.2294
1.800.323.8521 toll-free
Fax:
503.675.6932

The Arc of Oregon
A statewide membership organization of more than 2000 individuals, working together to create a better tomorrow for individuals with intellectual and developmental disabilities, and their families. The Arc of Oregon advocates for the rights and full community participation of all children and adults with intellectual and developmental disabilities. Programs administered by The Arc of Oregon are all focused on the concept of self-determination--that each client has the individual right to determine how they will live, work and play as well as how they will set and achieve their personal life goals.
Website: http://www.arcoregon.org
Address:
1745 State Street
Salem, OR 97301
Phone:
503.581.2726 Salem
1.877.581.2726 outside of Salem
Fax:
503.363.7168

Oregon Parent Training and Information Center
Website: http://www.orpti.org
Address:
2288 Liberty Street NE
Salem, OR 97301
Phone:
503.581.8156 Salem
1.888.505.2673 outside of Salem
Special Education Help Line: 1.888.891.6784
Fax:
503.391.0429

Oregon Technical Assistance Corporation
Website: http://www.otac.org
Address:
3886 Beverly Avenue NE, Suite I-21
Salem, OR 97305-1373
Phone:
503.364.9943
Fax:
503.364.1939
Help Autism Now Society
Website: http://www.helpautismnow.com/
Address:
HANS
4742 Liberty Road S, #198
Salem, OR 97302
Oregon Council on Developmental Disabilities
Website: http://www.ocdd.org
Address:
540 24th Place NE
Salem, OR 97301
Phone:
503.945.9941 Salem
800.292.4154 outside of Salem
Fax:
503.945.9947

NorthWest Down Syndrome Association
Our mission is to create and nurture a loving and inclusive community celebrating every person with Down syndrome. NWDSA will accomplish this mission by empowering and supporting families and individuals who have been touched by Down syndrome. We will work to increase education, promote public understanding and acceptance, and encourage full inclusion of individuals with Down syndrome in our community.
Website: http://nwdsa.org/
Address:
P.O. Box 9127
Portland, OR 97217
Phone:
503.238.0522

Lake Oswego Special Education PTA
We are an organization made up of parents and educators of children with special needs in the Lake Oswego School District, Lake Oswego, Oregon. We recognize that every child deserves excellence in education and quality of life. We are committed to serving the special education student and their families.
Website: http://www.losepta.org/
Address:
4345 West Bay Road
Lake Oswego, OR 97035
Phone:
503.636.4488
Fax:
503.635.5335
The Inclusive Child Care Program
The Inclusive Child Care Program serves families of children from birth through 17 years of age who:
- Have physical, developmental, mental, emotional, behavioral, or medical disabilities; and
- Need extra supports to be cared for in typical child care settings.
The Inclusive Child Care Program is a program of the Oregon Council on Developmental Disabilities in partnership with the Oregon Employment Department Child Care Division. The Child Care Division provides supports for the program through the federal Child Care and Development Fund.
Website: http://ocdd.org/index.php/ocdd/whatwedo/15/
Address:
600 NW 14th Avenue, Suite 100
Portland, OR 97209
Phone:
971.673.2286
1.866.837.0250 toll-free
Fax:
971.673.2971

Juntos Podemos
Quiénes Somos
Nuestra misión es servir, educar e incluir a las familias latinas para promover el bienestar, la autodeterminación e independencia de nuestros hijos con discapacidades en el desarrollo.
Website: http://www.juntos-podemos.org
Address:
2475 Lancaster Dr. NE, B-9
Salem, OR 97305
Phone:
503.566.7727
Fax:
503.566.7726

Disability Compass
Compass is a one-stop site providing information about and direction to services, products, and special health care resources for people with disabilities in Oregon, their families and those who support them.
Strong, creative communities are built on collaboration, communication and connection. The vision for Disability Compass is to create an internet-based collection of information and tools of interest to Oregonians who have disabilities, their families, and those who support them (support providers, health care providers, stores, restaurants, and more). The success of this vision requires the support and teamwork of everyone in our communities.
Website: http://www.disabilitycompass.org/
Address:
1750 SW Skyline Blvd, Suite 102
Portland, OR 97221
Phone:
503.292.4964 x107
Fax:
503.246.3869

The Arc of Washington County
Website: http://www.arcwash.org
Address:
4450 SW 184th Ave
P.O. Box 5778
Aloha, OR 97007-0778
Phone:
503.649.6110
Fax:
503.649.7264

The Arc of Multnomah - Clackamas
It all began in 1953, when a group of 12 parents of children with mental retardation and other developmental disabilities formed an organization known as the Portland Association for Retarded Children (PARC).
When PARC was founded, little was available for children and adults with developmental disabilities; and the few accessible resources frequently failed to respond to unique needs. Those with disabilities deemed "educable," (or capable of achieving a fourth or fifth grade academic level,) were placed in public schools. Within these schools, children with disabilities were tucked away in isolated classrooms, some of which were in basements.
Soon the parents of PARC found themselves immersed in advocacy: petitioning for more public school classrooms; securing a stable source of funding and a higher level of legitimacy through United Way; providing special services, and community outings to those residing in Fairview Training Center, etcetera. Through such efforts, PARC developed a reputation for tireless campaigning on behalf of people with mental retardation, in order so that they might be recognized as legitimate participants in society.
50 years later, the role of what is now known as The Arc of Multnomah-Clackamas continues as an enduring advocate and provider of supportive services. The philosophy of community services has changed, and inclusion is a standard, not a dream. With this in mind, The Arc remains a neutral place to receive information and support, to ask questions, learn about legal rights, and to engage in personal and community advocacy.
Website: http://www.thearcmult.org/
Address:
619 SW 11th Avenue, Suite 106
Portland, OR 97205-2692
Phone:
503.223.7279
Fax:
503.223.1488

The Arc of Benton County
The Arc of Benton County was founded in 1958 by family members and concerned citizens to advocate for persons with intellectual disabiities. It is a member-based non-profit corporation with a current membership of over 300 self advocates, family members, interested citizens and professionals in the field. It is an affiliate of The Arc of Oregon and The Arc of the United States. It has a proud history of advocating for and providing services for persons with intellectual and related developmental disabilities from "birth to death."
Website: http://arcbenton.org
Address:
414 NW 4th Street
Corvallis, OR 97330
Phone:
541.753.1711
Fax:
541.758.1354
